Kerstin got involved with the German PID patient group – dsai – right after her son’s diagnosis. Patient groups can be a valid source of information to families with a newly diagnosed patient.
IPOPI is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency patients worldwide through global collaboration.
Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.
Visit our website at www.ipopi.org