Management of gastro-intestinal issues in CVID patients
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IPOPI is a non-profit international organisation and the leading advocate for primary immunodeficiency (PID) patients worldwide working in collaboration with patients, doctors, politicians, regulators, pharmaceutical industry and other relevant stakeholders.
IPOPI is the Association of national PID patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency patients worldwide through global collaboration.
Visit our website at www.ipopi.org
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Management of gastro-intestinal issues in CVID patients
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In this IPOPI mini-documentary, we look closer at the world of primary and secondary immunodeficiencies. By blending personal narratives and global perspectives, we uncover the similarities, differences, and diagnostic hurdles of primary and secondary immunodeficiencies.
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Speaker: Prof John Hurst
Moderator: Martine Pergent
Sponsored by CSL Behring
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Second part of IPOPI’s mini documentary: management in adults Dr Virgil Dalm, patients Samantha and Bart
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First part of IPOPI’s mini documentary: management in children Prof Alain Fischer, family Melmoux, Dr Nizar Mahlaoui
Recorded in France in February 2020
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Speaker: Dr Pamela Lee
Moderator: Martine Pergent
Sponsored by Grifols
38:21
Speaker: Dr Virgil Dalm
Moderator: Martine Pergent
Sponsored by Takeda
42:22
Speaker: Prof Raffaele Badolato
Moderator: Martine Pergent
Sponsorerd by X4Pharmaceuticals
49:55
Speaker: Professor Charlotte Cunningham-Rundles
Moderator: Martine Pergent
Sponsored by CSL Behring
48:13
Speaker: Professor Stephen Jolles
Moderator: Martine Pergent
Sponsored by CSL Behring
43:50
5th IPOPI Clinical Care Webinar
Speaker: Prof Frédéric Rieux-Laucat
Moderator: Martine Pergent
Sponsored by Sobi
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4th IPOPI Clinical Care Webinar
Speaker: Prof Isabelle Meyts
Moderator: Martine Pergent
Sponsored by Octapharma
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12:29
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00:56
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3rd IPOPI Clinical Care Webinar
Speaker: Professor Troy Torgerson
Moderator: Martine Pergent
IG Therapies: From good to best practice
Made possible by a donation from Takeda
31:44
Second IPOPI Clinical Care Webinar
Speaker: Dr Kathleen Sullivan (Children’s Hospital of Philadelphia)
Moderator: Martine Pergent (IPOPI President)
Made possible with a donation from CSL Behring
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First IPOPI Clinical Care Webinar
Speaker: Prof Klaus Warnatz (Freiburg University)
Moderator: Martine Pergent (IPOPI President)
Kindly supported by Shire
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Dr Dalm works in a primary immunodeficiencies reference centre in Rotterdam, in the Netherlands, and explains why reference centres are unique treatment facilities for PID patients
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7:01
Patient testimony: Living with CGD
18:12
The importance of newborn screening for PIDs: TRECs/KRECs and beyond
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IPOPI 25th Anniversary speech
15:49
The Role of Specialised Nurse in PID
1:08:55
Chair: Prof Bobby Gaspar
Panel: Nurse Carla Duff, Mr Bruce Lim, Prof Alain Fischer, Mrs Jose Drabwell, Ethicist James Taylor
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A PID UK patient perspective on the importance of transition care from the paediatric to the adult clinic
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Focus on diagnosis and clinical care
November 8-10, Dubai, UAE
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César explains how the work-life can be impacted by living with a chronic condition
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IPOPI is hosting IPIC2017 in the vibrant city of Dubai on 8-10 November 2017!
The uniqueness of IPIC comes from its clinically orientated programme prepared with the input from the key primary immunodeficiencies stakeholders: doctors, patients and nurses.
#IPIC2017
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Dr Susana Lopes da Silva explains what PIDs are and how they are diagnosed – from clinical presentations to genetic diagnosis
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Dr Carlos Rodriguez Gallego explains what are PIDs and how important is for physicians and hospitals to cooperate to provide better care
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Dr Maria Nuñez highlights that any doctor can help in the diagnosis of PID patients by paying special attention to the warning signs.
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19.02
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Registries: From research to clinical practise: Experience from Europe
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Newborn screening for SCIDs: impact of gestational age and birth weight on TRECS and KRECS
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Loss-of-function mutations in IFIH1 predispose to severe viral respiratory infections in children
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A patient’s story of CVID and gastro-intestinal issues
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New frontiers in primary immunodeficiencies (PIDs): what have we learnt and what should we expect?
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Prof Bobby Gaspar – IPIC2015 Scientific Commitee President
Jose Drabwell – IPOPI President
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IPIC2015 was a great success with 700 participants! The second edition of the International Primary Immunodeficiencies Congress was held in the beautiful city of Budapest, Hungary, 5-6 of November 2015.
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IPIC (International Primary Immunodeficiencies Congress) is organised every two year by IPOPI (International Patient Organisation for Primary Immunodeficiencies).
400 participants attended the first edition held in Estoril (Lisbon), Portugal on 7 and 8 November 2013.
IPIC is a unique international forum focusing on clinical care and diagnosis in the PID field.
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What are PIDs?
Why is early diagnosis so important to PID patients?
Is it important to have access to different types of treatment?
Janice Ippolito | 20 May, 2016 at 2:07
“Complex not common” . I like that.
IPOPITV | 20 May, 2016 at 11:00
Agreed Janice 🙂