Patient testimonial – mother of a SCID patient

2:09

Patient testimonial – mother of a SCID patient

PUBLISHED 31 May, 2017

Cristina’s daughter was diagnosed with SCID and underwent a bone-marrow transplant.

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IPOPI Mini Documentary – A closer look at Primary and Secondary Immunodeficiencies

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In this IPOPI mini-documentary, we look closer at the world of primary and secondary immunodeficiencies. By blending personal narratives and global perspectives, we uncover the similarities, differences, and diagnostic hurdles of primary and secondary immunodeficiencies.
Treating Primary Immunodeficiencies

02:15
IPIC2019 – Dr Enrique Terol

10:36
PIDs in Africa – French version

2:25

Africa is still facing many issues with even basic health care but has huge potential for diagnosing and treating primary immunodeficiency (PID) patients. Many efforts towards diagnosis and care of PIDs are being done by national PID patient groups, by physicians, by IPOPI and by the pharmaceutical industry.
PIDs in Africa

02:25

Africa is still facing many issues with even basic health care but has huge potential for diagnosing and treating primary immunodeficiency (PID) patients. Many efforts towards diagnosis and care of PIDs are being done by national PID patient groups, by physicians, by IPOPI and by the pharmaceutical industry.
PID GENIUS Tutorial

03:27

IPOPI has developed PID GENIUS for you, to support you and other persons living with primary immunodeficiencies. PID GENIUS is a dynamic App that plays the role of a personal assistant that will help you keeping track of your treatments, day-to-day symptoms, most important documents in an easy way. It is meant at reducing paperwork and facilitating the discussion with your doctor.
PID testimonial – Parents and PID patient

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Marco and Yoli talking about how paediatric care for PID patients could be improved
Gaby Rosario, South Africa, Hypogammaglobulinemia patient on the need for individualized treatment

1:20

Importance of individualized treatment for PID patients.
Adrian Górecki, Poland, an XLA patient, sharing experience with different PID treatments.

1:41

Importance of individualized treatment for PID patients.
Kees Waas, Netherlands, father of 2 XLA patients, with his family experience on PID treatment

1:53

Importance of individualized treatment for PID patients.
PID patients health can improve with a change in treatment.

1:51

Importance of individualized treatment for PID patients.
Mother’s experience with the treatment of 3 XLA children

2:11

Importance of individualized treatment for PID patients

Patient testimonial – mother of a SCID patient

PUBLISHED 31 May, 2017

Related posts:

Related posts:

IPOPI Mini Documentary – A closer look at Primary and Secondary Immunodeficiencies

Treating Primary Immunodeficiencies

IPIC2019 – Dr Enrique Terol

PIDs in Africa – French version

PIDs in Africa

PID GENIUS Tutorial

PID testimonial – Parents and PID patient

Gaby Rosario, South Africa, Hypogammaglobulinemia patient on the need for individualized treatment

Adrian Górecki, Poland, an XLA patient, sharing experience with different PID treatments.

Kees Waas, Netherlands, father of 2 XLA patients, with his family experience on PID treatment

PID patients health can improve with a change in treatment.

Mother’s experience with the treatment of 3 XLA children