IPOPI – Improving awareness, diagnosis and treatment of primary immunodeficiencies worldwide

02:25

24 April, 2018

PUBLISHED 24 April, 2018

Africa is still facing many issues with even basic health care but has huge potential for diagnosing and treating primary immunodeficiency (PID) patients. Many efforts towards diagnosis and care of PIDs are being done by national PID patient groups, by physicians, by IPOPI and by the pharmaceutical industry.

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PID TESTIMONIAL – Dr Virgil Dalm, Netherlands

1:55
PID TESTIMONIAL – Yvonne, mother of a PID patient

2:08
PID TESTIMONIAL – Anke, a Hypogammaglobulinemia patient

2:23
IPIC2017 – Dr Eva Varga

12:03
IPIC2017 – Andrea Gressani

7:01
IPIC2017 – IPIC2017 – Mirjam Van der Burg

18:12
IPIC2017 – Eva Brox, Norway

5:23
IPIC2017 – Nurse Rosalind Fischer

15:49
IPIC2017 – Ethics sessions: What can be said, what should be said

1:08:55
IPIC2017 – PID Patient Rachel Hammond

8:10
IPIC2017 – Prof Helen Chapel

19:33
IPIC2017 video report

4:09
PID GENIUS Tutorial

03:27
PID testimonial – Elize Reus, mother of a PID patient

2:26
Patient testimonial – Césal Matias, X-LA patient

1:45
Patient testimonial – mother of a SCID patient

2:09
IPIC2017 – International Primary Immunodeficiencies Congress

1:16
Patient testimonial – Alberto Casaca, CDG patient

1:43
Patient testimonial – Rúben Cartaxo

1:55
Patient testimonial – mother and daughter with CVID

1:57
Patient testimonial – twin sisters with CVID

2:29
PID testimonial – Portuguese Immunologist

2:00
PID testimonial – Ricardo Pereira, XLA patient

1:33
PID testimonial – Lutz Kurnoth, CVID patient

1:38
PID testimonial – Mother of an Agammaglobulinemia patient

2:42
PID testimonial – Mother of a PID patient

2:22
PID testimonial – Spanish Immunologist

1:26
PID testimonial – an early diagnosed CVID patient and her father

2:08
PID testimonial – Dr Maria Nuñez on diagnosis of PIDs

01:10
PID testimonial – a CVID patient and an immunologist

01:52
PID testimonial – Parents and PID patient

2:14
PID testimonial – Carlos Jimenez, father of a PID patient

2:15
IPIC2015 Dr James Taylor

23.03
IPIC2015 Prof Mirjam van der Burg

19.02
IPIC2015 Dr Nizar Mahlaoui

9.26
IPIC2015 Dr Olaf Neth

6.21
IPIC2015 Dr Samira Asgari

7,38
IPIC2015 – Dr Charlotte Cunningham-Rundles

25.29
IPIC2015 – CVID Patient Dawn Smith presentation

18.01
IPIC2015 Prof Alain Fischer Keynote address

37:08
IPIC2015 Welcome

5:34
IPIC2015 – video report

5:20
IPIC 2013 – video report

5:04
Jose Drabwell, IPOPI’s President welcoming participants to IPIC2013

3:26
Prof Helen Chapel, Immunologist, answers crucial questions about Primary Immunodeficiencies

2:31
Availability of different treatments and PIDs. Lisa Baldea, Romania, currently on IVIG testimony

2:04
PID patients are faced with many health decisions. Anton Emelin, Russia, shares his brother’s story.

2:13
Bruce Lim, father of a PID patient. How school life can be affected by PID replacement therapy.

2:04
Stefan Nordeman, Sweden, CVID patient, juggling family life, work life and treatment.

1:38
Transition care in young PID patients. Nurse Sarita and mother Anneli complementary perspectives.

2:22
PID testimonial – Andrea Gressani, Chronic Granulomatous Disease patient

1:30
PID Testimonial – Rubby Chawla, Mother of PID children and Dr Adli Ali, Immunologist

1:24
PID Testimonial – Dragana Koruga, mother of PID patient

1:47
PID Physician and Patient testimonials – Dr Nizar Mahlaoui and Karin Modl

1:02
PID Patient testimonial – Jose Drabwell, CVID patient, IPOPI President

1:35
Gaby Rosario, South Africa, Hypogammaglobulinemia patient on the need for individualized treatment

1:20
Adrian Górecki, Poland, an XLA patient, sharing experience with different PID treatments.

1:41
Kees Waas, Netherlands, father of 2 XLA patients, with his family experience on PID treatment

1:53
PID patients health can improve with a change in treatment.

1:51
Mother’s experience with the treatment of 3 XLA children

2:11

24 April, 2018

PUBLISHED 24 April, 2018

Related VIDEO

PID TESTIMONIAL – Dr Virgil Dalm, Netherlands

PID TESTIMONIAL – Yvonne, mother of a PID patient

PID TESTIMONIAL – Anke, a Hypogammaglobulinemia patient

IPIC2017 – Dr Eva Varga

IPIC2017 – Andrea Gressani

IPIC2017 – IPIC2017 – Mirjam Van der Burg

IPIC2017 – Eva Brox, Norway

IPIC2017 – Nurse Rosalind Fischer

IPIC2017 – Ethics sessions: What can be said, what should be said

IPIC2017 – PID Patient Rachel Hammond

IPIC2017 – Prof Helen Chapel

IPIC2017 video report

PID GENIUS Tutorial

PID testimonial – Elize Reus, mother of a PID patient

Patient testimonial – Césal Matias, X-LA patient

Patient testimonial – mother of a SCID patient

IPIC2017 – International Primary Immunodeficiencies Congress

Patient testimonial – Alberto Casaca, CDG patient

Patient testimonial – Rúben Cartaxo

Patient testimonial – mother and daughter with CVID

Patient testimonial – twin sisters with CVID

PID testimonial – Portuguese Immunologist

PID testimonial – Ricardo Pereira, XLA patient

PID testimonial – Lutz Kurnoth, CVID patient

PID testimonial – Mother of an Agammaglobulinemia patient

PID testimonial – Mother of a PID patient

PID testimonial – Spanish Immunologist

PID testimonial – an early diagnosed CVID patient and her father

PID testimonial – Dr Maria Nuñez on diagnosis of PIDs

PID testimonial – a CVID patient and an immunologist

PID testimonial – Parents and PID patient

PID testimonial – Carlos Jimenez, father of a PID patient

IPIC2015 Dr James Taylor

IPIC2015 Prof Mirjam van der Burg

IPIC2015 Dr Nizar Mahlaoui

IPIC2015 Dr Olaf Neth

IPIC2015 Dr Samira Asgari

IPIC2015 – Dr Charlotte Cunningham-Rundles

IPIC2015 – CVID Patient Dawn Smith presentation

IPIC2015 Prof Alain Fischer Keynote address

IPIC2015 Welcome

IPIC2015 – video report

IPIC 2013 – video report

Jose Drabwell, IPOPI’s President welcoming participants to IPIC2013

Prof Helen Chapel, Immunologist, answers crucial questions about Primary Immunodeficiencies

Availability of different treatments and PIDs. Lisa Baldea, Romania, currently on IVIG testimony

PID patients are faced with many health decisions. Anton Emelin, Russia, shares his brother’s story.

Bruce Lim, father of a PID patient. How school life can be affected by PID replacement therapy.

Stefan Nordeman, Sweden, CVID patient, juggling family life, work life and treatment.

Transition care in young PID patients. Nurse Sarita and mother Anneli complementary perspectives.

PID testimonial – Andrea Gressani, Chronic Granulomatous Disease patient

PID Testimonial – Rubby Chawla, Mother of PID children and Dr Adli Ali, Immunologist

PID Testimonial – Dragana Koruga, mother of PID patient

PID Physician and Patient testimonials – Dr Nizar Mahlaoui and Karin Modl

PID Patient testimonial – Jose Drabwell, CVID patient, IPOPI President

Gaby Rosario, South Africa, Hypogammaglobulinemia patient on the need for individualized treatment

Adrian Górecki, Poland, an XLA patient, sharing experience with different PID treatments.

Kees Waas, Netherlands, father of 2 XLA patients, with his family experience on PID treatment

PID patients health can improve with a change in treatment.

Mother’s experience with the treatment of 3 XLA children