IG Therapies: From good to best practice by Professor Troy Torgerson September 26, 2019
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IPOPI is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency patients worldwide through global collaboration.
Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.
Visit our website at www.ipopi.org
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IG Therapies: From good to best practice by Professor Troy Torgerson September 26, 2019
Essentials of PID diagnostics
31:44
Second IPOPI Clinical Care Webinar
Speaker: Dr Kathleen Sullivan (Children’s Hospital of Philadelphia)
Moderator: Martine Pergent (IPOPI President)
Made possible with a donation from CSL Behring
28:22
First IPOPI Clinical Care Webinar
Speaker: Prof Klaus Warnatz (Freiburg University)
Moderator: Martine Pergent (IPOPI President)
Kindly supported by Shire
1:55
Dr Dalm works in a primary immunodeficiencies reference centre in Rotterdam, in the Netherlands, and explains why reference centres are unique treatment facilities for PID patients
12:03
7:01
Patient testimony: Living with CGD
18:12
The importance of newborn screening for PIDs: TRECs/KRECs and beyond
5:23
IPOPI 25th Anniversary speech
15:49
The Role of Specialised Nurse in PID
1:08:55
Chair: Prof Bobby Gaspar
Panel: Nurse Carla Duff, Mr Bruce Lim, Prof Alain Fischer, Mrs Jose Drabwell, Ethicist James Taylor
8:10
A PID UK patient perspective on the importance of transition care from the paediatric to the adult clinic
19:33
4:09
Focus on diagnosis and clinical care
November 8-10, Dubai, UAE
1:45
César explains how the work-life can be impacted by living with a chronic condition
1:16
IPOPI is hosting IPIC2017 in the vibrant city of Dubai on 8-10 November 2017!
The uniqueness of IPIC comes from its clinically orientated programme prepared with the input from the key primary immunodeficiencies stakeholders: doctors, patients and nurses.
#IPIC2017
2:00
Dr Susana Lopes da Silva explains what PIDs are and how they are diagnosed – from clinical presentations to genetic diagnosis
1:26
Dr Carlos Rodriguez Gallego explains what are PIDs and how important is for physicians and hospitals to cooperate to provide better care
01:10
Dr Maria Nuñez highlights that any doctor can help in the diagnosis of PID patients by paying special attention to the warning signs.
23.03
19.02
9.26
Registries: From research to clinical practise: Experience from Europe
6.21
Newborn screening for SCIDs: impact of gestational age and birth weight on TRECS and KRECS
7,38
Loss-of-function mutations in IFIH1 predispose to severe viral respiratory infections in children
25.29
Management of gastro-intestinal issues in CVID patients
18.01
A patient’s story of CVID and gastro-intestinal issues
37:08
New frontiers in primary immunodeficiencies (PIDs): what have we learnt and what should we expect?
5:34
Prof Bobby Gaspar – IPIC2015 Scientific Commitee President
Jose Drabwell – IPOPI President
5:20
IPIC2015 was a great success with 700 participants! The second edition of the International Primary Immunodeficiencies Congress was held in the beautiful city of Budapest, Hungary, 5-6 of November 2015.
5:04
IPIC (International Primary Immunodeficiencies Congress) is organised every two year by IPOPI (International Patient Organisation for Primary Immunodeficiencies).
400 participants attended the first edition held in Estoril (Lisbon), Portugal on 7 and 8 November 2013.
IPIC is a unique international forum focusing on clinical care and diagnosis in the PID field.
3:26
2:31
What are PIDs?
Why is early diagnosis so important to PID patients?
Is it important to have access to different types of treatment?