CLINICAL MANAGEMENT

Hyperinflammation in PID & how it differs from COVID-19

43:50

5th IPOPI Clinical Care Webinar

Speaker: Prof Frédéric Rieux-Laucat
Moderator: Martine Pergent

Sponsored by Sobi
PID & Cancer – Exploring the Crossover

45:27

4th IPOPI Clinical Care Webinar

Speaker: Prof Isabelle Meyts
Moderator: Martine Pergent

Sponsored by Octapharma
IPIC2019 – Prof Isabelle Meyts

20:11
IPIC2019 – Dr Tandakha Dieye

12:29
IPIC2019 – Dr Enrique Terol

10:36
IPIC2019 – Dr Olaf Neth

20:20
IPIC2019 – Dr John Hurst

26:37
IPIC2019 – Dr Emilie Catherinot

28:30
IPIC2019 – Prof Alain Fischer

25:25
IPIC2019 – Prof Surjit Singh

11:51
IPIC2019 – Dr Maartje Blom

19:37
IPIC2019 – Prof Stuart Tangye

24:07
IPIC2019 – Dr Antônio Condino-Neto

10:13
IPIC2019

00:56
IG Therapies: From good to best practice

39:49

3rd IPOPI Clinical Care Webinar

Speaker: Professor Troy Torgerson
Moderator: Martine Pergent
IG Therapies: From good to best practice

Made possible by a donation from Takeda
Essentials of PID diagnostics

31:44

Second IPOPI Clinical Care Webinar

Speaker: Dr Kathleen Sullivan (Children’s Hospital of Philadelphia)
Moderator: Martine Pergent (IPOPI President)

Made possible with a donation from CSL Behring
Advances in management and treatment of CVID

28:22

First IPOPI Clinical Care Webinar

Speaker: Prof Klaus Warnatz (Freiburg University)
Moderator: Martine Pergent (IPOPI President)

Kindly supported by Shire
PID TESTIMONIAL – Dr Virgil Dalm, Netherlands

1:55

Dr Dalm works in a primary immunodeficiencies reference centre in Rotterdam, in the Netherlands, and explains why reference centres are unique treatment facilities for PID patients
IPIC2017 – Dr Eva Varga

12:03

Patient testimony: Living with Hyper IgE Syndrome, a fascinating journey
IPIC2017 – Andrea Gressani

7:01

Patient testimony: Living with CGD
IPIC2017 – IPIC2017 – Mirjam Van der Burg

18:12

The importance of newborn screening for PIDs: TRECs/KRECs and beyond
IPIC2017 – Eva Brox, Norway

5:23

IPOPI 25th Anniversary speech
IPIC2017 – Nurse Rosalind Fischer

15:49

The Role of Specialised Nurse in PID
IPIC2017 – Ethics sessions: What can be said, what should be said

1:08:55

Chair: Prof Bobby Gaspar
Panel: Nurse Carla Duff, Mr Bruce Lim, Prof Alain Fischer, Mrs Jose Drabwell, Ethicist James Taylor
IPIC2017 – PID Patient Rachel Hammond

8:10

A PID UK patient perspective on the importance of transition care from the paediatric to the adult clinic
IPIC2017 – Prof Helen Chapel

19:33
IPIC2017 video report

4:09

Focus on diagnosis and clinical care
November 8-10, Dubai, UAE
Patient testimonial – Césal Matias, X-LA patient

1:45

César explains how the work-life can be impacted by living with a chronic condition
IPIC2017 – International Primary Immunodeficiencies Congress

1:16

IPOPI is hosting IPIC2017 in the vibrant city of Dubai on 8-10 November 2017!
The uniqueness of IPIC comes from its clinically orientated programme prepared with the input from the key primary immunodeficiencies stakeholders: doctors, patients and nurses.
#IPIC2017
PID testimonial – Portuguese Immunologist

2:00

Dr Susana Lopes da Silva explains what PIDs are and how they are diagnosed – from clinical presentations to genetic diagnosis
PID testimonial – Spanish Immunologist

1:26

Dr Carlos Rodriguez Gallego explains what are PIDs and how important is for physicians and hospitals to cooperate to provide better care
PID testimonial – Dr Maria Nuñez on diagnosis of PIDs

01:10

Dr Maria Nuñez highlights that any doctor can help in the diagnosis of PID patients by paying special attention to the warning signs.
IPIC2015 Dr James Taylor

23.03
IPIC2015 Prof Mirjam van der Burg

19.02
IPIC2015 Dr Nizar Mahlaoui

9.26

Registries: From research to clinical practise: Experience from Europe
IPIC2015 Dr Olaf Neth

6.21

Newborn screening for SCIDs: impact of gestational age and birth weight on TRECS and KRECS
IPIC2015 Dr Samira Asgari

7,38

Loss-of-function mutations in IFIH1 predispose to severe viral respiratory infections in children
IPIC2015 – Dr Charlotte Cunningham-Rundles

25.29

Management of gastro-intestinal issues in CVID patients
IPIC2015 – CVID Patient Dawn Smith presentation

18.01

A patient’s story of CVID and gastro-intestinal issues
IPIC2015 Prof Alain Fischer Keynote address

37:08

New frontiers in primary immunodeficiencies (PIDs): what have we learnt and what should we expect?
IPIC2015 Welcome

5:34

Prof Bobby Gaspar – IPIC2015 Scientific Commitee President
Jose Drabwell – IPOPI President
IPIC2015 – video report

5:20

IPIC2015 was a great success with 700 participants! The second edition of the International Primary Immunodeficiencies Congress was held in the beautiful city of Budapest, Hungary, 5-6 of November 2015.
IPIC 2013 – video report

5:04

IPIC (International Primary Immunodeficiencies Congress) is organised every two year by IPOPI (International Patient Organisation for Primary Immunodeficiencies).
400 participants attended the first edition held in Estoril (Lisbon), Portugal on 7 and 8 November 2013.
IPIC is a unique international forum focusing on clinical care and diagnosis in the PID field.
Jose Drabwell, IPOPI’s President welcoming participants to IPIC2013

3:26
Prof Helen Chapel, Immunologist, answers crucial questions about Primary Immunodeficiencies

2:31

What are PIDs?
Why is early diagnosis so important to PID patients?
Is it important to have access to different types of treatment?

Shortening the PID diagnostic delay with calculated globulins

PUBLISHED 10 July, 2020

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Hyperinflammation in PID & how it differs from COVID-19

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IPIC2019 – Dr Olaf Neth

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IPIC2017 – Nurse Rosalind Fischer

IPIC2017 – Ethics sessions: What can be said, what should be said

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Patient testimonial – Césal Matias, X-LA patient

IPIC2017 – International Primary Immunodeficiencies Congress

PID testimonial – Portuguese Immunologist

PID testimonial – Spanish Immunologist

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IPIC2015 Dr James Taylor

IPIC2015 Prof Mirjam van der Burg

IPIC2015 Dr Nizar Mahlaoui

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IPIC2015 Dr Samira Asgari

IPIC2015 – Dr Charlotte Cunningham-Rundles

IPIC2015 – CVID Patient Dawn Smith presentation

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IPIC2015 – video report

IPIC 2013 – video report

Jose Drabwell, IPOPI’s President welcoming participants to IPIC2013

Prof Helen Chapel, Immunologist, answers crucial questions about Primary Immunodeficiencies