PID TESTIMONIAL – Anke, a Hypogammaglobulinemia patient

2:23

PID TESTIMONIAL – Anke, a Hypogammaglobulinemia patient

PUBLISHED 26 March, 2018

Anke got her definitive diagnosis only at the age of 42. Her untreated immunodeficiency caused her problems throughout life, but especially during her university years.

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IPOPI Mini Documentary – A closer look at Primary and Secondary Immunodeficiencies

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In this IPOPI mini-documentary, we look closer at the world of primary and secondary immunodeficiencies. By blending personal narratives and global perspectives, we uncover the similarities, differences, and diagnostic hurdles of primary and secondary immunodeficiencies.
What are Primary Immunodeficiencies?

01:50
PIDs and autoinflammation – management in children

14:18

First part of IPOPI’s mini documentary: management in children Prof Alain Fischer, family Melmoux, Dr Nizar Mahlaoui

Recorded in France in February 2020
PID Genius – relaunch

2:32

Updated and improved version, now available in 5 additional languages
PID TESTIMONIAL – Yvonne, mother of a PID patient

2:08

Yvonne is the president of the Dutch primary immunodeficiencies patient group (Stichting voor Afweerstoornissen) and the mother of a teenage boy with a PID. She shares her concerns for when he enters adult life
Patient testimonial – Rúben Cartaxo

1:55

Rúben was diagnosed as a baby with CGD and that has had a very positive impact on his health.
Patient testimonial – mother and daughter with CVID

1:57

Mother and daughter talk about the impact of PIDs in social life
Patient testimonial – twin sisters with CVID

2:29

Ana and Maria João have CVID and were diagnosed together, following several infections and hospitalisations.
Availability of different treatments and PIDs. Lisa Baldea, Romania, currently on IVIG testimony

2:04

Burden of Treatment of PID conditions.
PID patients are faced with many health decisions. Anton Emelin, Russia, shares his brother’s story.

2:13

Burden of Treatment of PID conditions.
Bruce Lim, father of a PID patient. How school life can be affected by PID replacement therapy.

2:04

Burden of Treatment of PID conditions.
Stefan Nordeman, Sweden, CVID patient, juggling family life, work life and treatment.

1:38

Burden of Treatment of PIDs
Transition care in young PID patients. Nurse Sarita and mother Anneli complementary perspectives.

2:22

Burden of Treatment of PIDs

PID TESTIMONIAL – Anke, a Hypogammaglobulinemia patient

PUBLISHED 26 March, 2018

Related posts:

Related posts:

IPOPI Mini Documentary – A closer look at Primary and Secondary Immunodeficiencies

What are Primary Immunodeficiencies?

PIDs and autoinflammation – management in children

PID Genius – relaunch

PID TESTIMONIAL – Yvonne, mother of a PID patient

Patient testimonial – Rúben Cartaxo

Patient testimonial – mother and daughter with CVID

Patient testimonial – twin sisters with CVID

Availability of different treatments and PIDs. Lisa Baldea, Romania, currently on IVIG testimony

PID patients are faced with many health decisions. Anton Emelin, Russia, shares his brother’s story.

Bruce Lim, father of a PID patient. How school life can be affected by PID replacement therapy.

Stefan Nordeman, Sweden, CVID patient, juggling family life, work life and treatment.

Transition care in young PID patients. Nurse Sarita and mother Anneli complementary perspectives.