PID testimonial – a CVID patient and an immunologist

01:52

PID testimonial – a CVID patient and an immunologist

PUBLISHED 6 July, 2016

Yolanda talks about her delayed diagnosis of CVID and Dr Nuñes expresses her concerns when receiving a new patient with a delayed diagnosis.

You must be logged in to post a comment.

IPOPI Hard Talks: APDS Diagnosis

59:07
IPOPI Hard Talks: Primary Immunodeficiencies and Allergy Crossovers

1:01:12
IPOPI Mini Documentary – A closer look at Primary and Secondary Immunodeficiencies

14:55

In this IPOPI mini-documentary, we look closer at the world of primary and secondary immunodeficiencies. By blending personal narratives and global perspectives, we uncover the similarities, differences, and diagnostic hurdles of primary and secondary immunodeficiencies.
IPOPI Clinical Care Webinar: Wiskott-Aldrich Syndrome (WAS)

59:57
Diagnosing Primary Immunodeficiencies

2:12
What are Primary Immunodeficiencies?

01:50
Genetic testing for PID

50:00

Speaker: Dr Pamela Lee
Moderator: Martine Pergent

Sponsored by Grifols
PIDs in Africa – French version

2:25

Africa is still facing many issues with even basic health care but has huge potential for diagnosing and treating primary immunodeficiency (PID) patients. Many efforts towards diagnosis and care of PIDs are being done by national PID patient groups, by physicians, by IPOPI and by the pharmaceutical industry.
PIDs in Africa

02:25

Africa is still facing many issues with even basic health care but has huge potential for diagnosing and treating primary immunodeficiency (PID) patients. Many efforts towards diagnosis and care of PIDs are being done by national PID patient groups, by physicians, by IPOPI and by the pharmaceutical industry.
IPIC2017 – Andrea Gressani

7:01

Patient testimony: Living with CGD
Patient testimonial – Alberto Casaca, CDG patient

1:43

Alberto Casaca was diagnosed when he was 15 years old, he feels like the diagnosis saved his life.
PID testimonial – Ricardo Pereira, XLA patient

1:33

Ricardo Pereira, president of APDIP, Portuguese PID patient group, and an XLA patient shares his experience with his diagnosis
PID testimonial – Lutz Kurnoth, CVID patient

1:38
PID testimonial – Mother of an Agammaglobulinemia patient

2:42

Kerstin got involved with the German PID patient group – dsai – right after her son’s diagnosis. Patient groups can be a valid source of information to families with a newly diagnosed patient.
PID testimonial – Mother of a PID patient

2:22

Cornelia tells us about the time prior to her son’s diagnosis and what remains to be done in Germany for better care for primary immunodeficiency patients
PID testimonial – an early diagnosed CVID patient and her father

2:08

Father and daughter talk about the family experience with diagnosis and treatment
PID testimonial – Carlos Jimenez, father of a PID patient

2:15

Benefits of early diagnosis and impact in PIDs in patients’ lives
PID testimonial – Andrea Gressani, Chronic Granulomatous Disease patient

1:30

Benefits of early diagnosis and treatment in Primary Immunodeficiencies
PID Testimonial – Rubby Chawla, Mother of PID children and Dr Adli Ali, Immunologist

1:24

Benefits of early diagnosis and treatment in Primary Immunodeficiencies
PID Testimonial – Dragana Koruga, mother of PID patient

1:47

Benefits of early diagnosis and treatment in Primary Immunodeficiencies
PID Physician and Patient testimonials – Dr Nizar Mahlaoui and Karin Modl

1:02

Benefits of early diagnosis and treatment in Primary Immunodeficiencies
PID Patient testimonial – Jose Drabwell, CVID patient, IPOPI President

1:35

Benefits of early diagnosis and treatment in Primary Immunodeficiencies

PID testimonial – a CVID patient and an immunologist

PUBLISHED 6 July, 2016

Related posts:

Related posts:

IPOPI Hard Talks: APDS Diagnosis

IPOPI Hard Talks: Primary Immunodeficiencies and Allergy Crossovers

IPOPI Mini Documentary – A closer look at Primary and Secondary Immunodeficiencies

IPOPI Clinical Care Webinar: Wiskott-Aldrich Syndrome (WAS)

Diagnosing Primary Immunodeficiencies

What are Primary Immunodeficiencies?

Genetic testing for PID

PIDs in Africa – French version

PIDs in Africa

IPIC2017 – Andrea Gressani

Patient testimonial – Alberto Casaca, CDG patient

PID testimonial – Ricardo Pereira, XLA patient

PID testimonial – Lutz Kurnoth, CVID patient

PID testimonial – Mother of an Agammaglobulinemia patient

PID testimonial – Mother of a PID patient

PID testimonial – an early diagnosed CVID patient and her father

PID testimonial – Carlos Jimenez, father of a PID patient

PID testimonial – Andrea Gressani, Chronic Granulomatous Disease patient

PID Testimonial – Rubby Chawla, Mother of PID children and Dr Adli Ali, Immunologist

PID Testimonial – Dragana Koruga, mother of PID patient

PID Physician and Patient testimonials – Dr Nizar Mahlaoui and Karin Modl

PID Patient testimonial – Jose Drabwell, CVID patient, IPOPI President